About CFF


Our mission

Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States. Right now there is no cure, but the Cystic Fibrosis Foundation is determined to change that.

Our commitment

When the Cystic Fibrosis Foundation was established in 1955, children born with CF were not expected to live long enough to attend elementary school. Little was known about the devastating genetic disease, and no effective treatments were available.  In an effort to save their children and help all those with CF, a concerned group of parents banded together to help find the scientific answers that would lead to new treatments and a cure.  Thanks to Foundation investments in cutting-edge research and care, made possible by the businesses and individual donors who support our mission, today, many people with CF are living into their 30s, 40s and beyond.  In just two generations, we have changed the face of this disease from one of despair to one of hope. 


Contribute to scientific advances that are making history.

Foundation-supported scientists discovered the cystic fibrosis gene in 1989 – a monumental breakthrough on the road to a cure. The Foundation’s innovative approach to research continues to produce remarkable results. In 2012, the first drug to address the underlying cause of the disease was approved by the Food and Drug Administration. The science behind this drug has opened exciting new doors to research and development that may lead to a cure for all people living with CF.


Partner with an organization that is making headlines.

Forbes, BusinessWeek, USA Today and Newsweek have recognized the Foundation’s unique business model, which applies the same results-driven approach of a “for profit” company to finding new treatments for CF. This model has been emulated by a number of nonprofits, particularly organizations devoted to rare diseases.

 © Copyright 2019,  Entertainment Merchants Association
EMA - P.O. Box 6339, N. Hollywood, CA 91603 - email